Elpha Green Cottage
Sparty Lea
Allendale
Hexham
Northumberland
NE47 9UT

Web: www.xlhnetwork.org

The XLH Network was formed in November 1996 as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia. The XLH Network provides members with up-to-date information on diagnosis, treatment and the very latest research. Through the F-HYPDRR mailing list, the XLH Network helps connect patients with clinicians and researchers as well as with each other.

Further information and registration details can be located on their website.