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XLH Network

Elpha Green Cottage
Sparty Lea
Allendale
Hexham
Northumberland
NE47 9UT

Web: www.xlhnetwork.org

The XLH Network was formed in November 1996 as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia. The XLH Network provides members with up-to-date information on diagnosis, treatment and the very latest research. Through the F-HYPDRR mailing list, the XLH Network helps connect patients with clinicians and researchers as well as with each other.

Further information and registration details can be located on their website.

Checked: 16 Feb 2010

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