49 Inglis Avenue
Port Seton
East Lothian
Scotland
EH32 0AG

Tel: 01875 819822
Web: www.moebiusresearchtrust.org

The Moebius Syndrome Research Trust has been set up for two main reasons:

• To raise £250,000 allowing ground breaking research into the cause of Moebius Syndrome
• To find 100 people with Moebius Syndrome who will assist us with the DNA testing

Their website also provides a lot of information about the syndrome.