4. Moebius Research Trust

Moebius Research Trust

49 Inglis Avenue
Port Seton
East Lothian
Scotland EH32 0AG

Tel: 01875 819822 Web: www.moebiusresearchtrust.org

The Moebius Syndrome Research Trust has been set up for two main reasons:
  • To raise ú250,000 allowing ground breaking research into the cause of Moebius Syndrome
  • To find 100 people with Moebius Syndrome who will assist us with the DNA testing
Their website also provides a lot of information about the syndrome.

Last updated on 21/07/2012