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Restricted Growth Association

PO Box 15755
Solihull
B93 3FY

Tel: 0300 111 1970
Web: www.restrictedgrowth.co.uk

The Restricted Growth Association (RGA) promotes the interests of people of restricted growth and their families. It is open to all those affected by restricted growth conditions as well as professionals and other interested parties. It provides a forum for the exchange of information and advice and offers mutual support and encouragement. The website includes information about the organisation, other resources and details of how to obtain publications. Gatherings of RGA members take various forms - conventions, dinner-dances, family days and regional socials. Close links are maintained with other charitable groups and government departments to represent the views of short-statured people and press for changes where necessary.

The RGA publishes a quarterly newsletter and a range of publications are available. General publications include: The layman's guide to restricted growth and Coping with restricted growth. Booklets looking in depth at the various restricted growth conditions include the following:

  • What is achondroplasia?
  • What is hypochondroplasia?
  • What is pseudochondroplasia?
  • What is SED?
  • What is diastrophic dysplasia?

There are also a number of 'lifestyle' booklets. Titles include the following:

  • Babies & the early years
  • Going to school
  • What shall I wear?
  • Personal hygiene
  • Careers, employment & education
  • Driving
Checked: 31 Oct 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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