Web: www.orpha.net

Orphanet is a database of information on rare diseases and orphan drugs. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases.

Orphanet includes a professional encyclopaedia, which is expert-authored and peer-reviewed, a patient encyclopaedia and a directory of expert services. This directory includes information on relevant clinics, clinical laboratories, research activities and patient organisations.