36 Borrowdale Avenue
Gatley
Cheadle
Cheshire
SK8 4QF

Tel: 0161 428 8583 (evenings)
Web: http://uk.groups.yahoo.com/group/ohdosyndrome/?tab=s

The Ohdo Syndrome Family Network is run from the home of mother whose child has this rare syndrome. The following services are offered throughout the UK and worldwide.

• Contact with other families affected.
• Support.
• Information - contribution to costs is required.
• A newsletter is planned.