25 Pen-y-Lan Terrace
Cardiff
CF23 9EU

Tel: 0845 634 2630 or 029 2045 4242
Web: www.nystagmusnet.org

Nystagmus is a form of visual impairment. It is an involuntary eye movement which cannot be corrected by wearing spectacles or contact lenses. Accompanying eye conditions such as short or long sightedness or astigmatism may be corrected, enabling the sufferer to see more clearly.

The Network is a self-help group run by people who are affected by nystagmus. The Network was founded in 1984 by Vivien Jones whose son, Sam, has nystagmus. Founder members had all experienced widespread ignorance about nystagmus and decided to set up a self-help group to provide support and information to all those affected. The Network aims to promote awareness and understanding, and to encourage medical research into the condition. The Network is involved in the following activities:

• Publications include information packs for parents, adults and teachers. Also, a number of factsheets including: Nystagmus and Driving, Nystagmus and Computers, and Early Onset Nystagmus: a parents' guide is a comprehensive 48 page book about this complex eye condition. Although aimed at parents, many professionals find it an invaluable resource too.
• Focus is the quarterly newsletter keeping members updated regarding research, equipment etc.
• An information card for school teachers has been produced which suggests how they may assist pupils with nystagmus; also a pocket size ID card for pupils.
• Annual open days are held, with guest speakers (audio cassettes available) and at regional centres.
• The Network can provide speakers for seminars, teachers' workshops and other meetings.
• They support research and have organised two international research workshops.
• They have two books specifically for children with nystagmus: "Wobbly Eyes" and "Tales of Northwick".
• Their website includes an interactive forum