NSPKU - National Society for Phenylketonuria
P O Box 26642
London
N14 4ZF
Tel: 020 8364 3010
Web: www.nspku.org
The National Society for Phenylketonuria (NSPKU) is a parent support group. The Society provides the opportunity for people with phenylketonuria, family and carers to meet and share their experiences. It also distributes information, and promotes the educational, medical and social welfare of persons with phenylketonuria. The Society promotes and encourages regional support groups around the country; contact the above address for details of these.
The Society also produces a quarterly magazine, booklets, and leaflets.