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The National Creutzfeldt-Jakob Disease Surveillance Unit

Western General Hospital
Crewe Road
Edinburgh
EH4 2XU

Tel: 0131 537 2128/1980
Web: www.cjd.ed.ac.uk

The incidence of Creutzfeldt-Jakob disease (CJD) is monitored in the UK by the National CJD Surveillance Unit based at the Western General Hospital in Edinburgh, Scotland. The unit brings together a team of clinical neurologists, neuropathologists, epidemiologists and other scientists specialising in the investigation of this disease. Their website (address above) includes the following:

  • Incidence figures for CJD in the UK.
  • Summarises the research in progress at the CJD unit.
  • Provides some background information about CJD and other human spongiform encephalopathies.
  • Provides links to other resources, support, and contrary points of view available on the web.
Checked: 18 Feb 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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