Myelodysplastic syndromes are a group of diverse bone marrow disorders in which the bone marrow does not produce enough healthy blood cells.
The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to myelodysplastic syndromes.
A major Foundation effort is their international information network. This network provides patients with referrals to Centres of Excellence, contact names for available clinical trials, sharing of new research and treatment options between physicians, and extension of educational support to both physicians and patients.
In response to the needs expressed by patients, families, and physicians, they have established patient advocacy groups, research funding, and physician education.
The foundation has branches in various countries, including the UK (contact details above). Their website includes information about myelodysplastic syndromes.
The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest. Find out more about updating.
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