Hughes Syndrome Foundation
Conybeare House
Guy's Hospital
London
SE1 9RT

Tel: 020 7188 8217
Web: www.hughes-syndrome.org and http://hughes-syndrome.healthunlocked.com (support forum)

The Hughes Syndrome Foundation aims to offer understanding and support to sufferers of Hughes syndrome - also known as antiphospholipid syndrome. Hughes syndrome is an autoimmune disorder which can cause headaches, migraines, strokes, and thrombosis - it can also cause recurrent miscarriage. Once diagnosed, Hughes syndrome is potentially treatable but, as the condition is relatively new, it often goes undetected or misdiagnosed. The foundation hopes to raise awareness of Hughes syndrome so that they can discover more about its causes, prevalence, and treatments.

They also aim to offer:

• Information, education and support on Hughes syndrome.
• Support research into the condition.
• To raise funds to provide information, education and research.

The Hughes Syndrome Foundation has set up a membership scheme which gives its members up-to-date information, through a regular newsletter, on everything happening with the foundation, the latest research and the condition.