128 Beesmoor Road
Frampton Cotterell
Bristol
BS36 2JP

Tel: 01454 850557
Web: www.headlines.org.uk

Headlines began in 1993 as ‘The Craniofacial Support Group’ and was set up by a group of parents whose children were affected by craniosynostosis.

Today, Headlines - Craniofacial Support is a registered charity run by trustees (who include medical professionals) together with a part-time employee. Conditions supported include Apert, Crouzon, Pfeiffer, Saethre-Chotzen, Muenke and Craniofrontonasal Syndromes together with various non-syndromic and Single Suture Craniosynostosis.

Headlines is working to:

• Increase awareness of craniosynostosis and its associated conditions amongst professionals and the general public so that all affected persons receive the appropriate treatment.
• Help all those affected by craniosynostosis and associated conditions throughout their lives, to achieve their potential and meet their special challenges, by making readily available a comprehensive range of support services.

Headlines produce a newsletter three times a year and have an extensive library of leaflets, medical articles, videos and other resources.