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Haemochromatosis Society
Hollybush House
Hadley Green
Barnet
EN5 5PR
Tel: 020 8449 1363
Fax: 020 8449 1363
Web: www.haemochromatosis.org.uk
Best time to telephone: Monday - Friday, 9am - 5pm
The aims and activities of the Haemochromatosis Society include the following.
- To support people with haemochromatosis by providing help with their problems.
- To ensure brothers, sisters and children are tested in due time.
- A quarterly newsletter is published giving news and views from members in the UK and from around the world. A handbook is provided for members.
- Opportunities to contact other members living nearby are arranged if they wish. Also, regional meetings are arranged.
- To promote awareness among the health professions, patients and their families, the general public and policy makers so that the condition may be diagnosed and treated in time.
- There is also a need to overcome the misconceptions that haemochromatosis is rare, that only middle-aged men are at risk, and that women are seldom affected until their menopause.
- To provide resource material for the allied medical professions and encourage research.
- The Society keeps up to date on the latest studies of cause, diagnosis and treatment. The Society belongs to the umbrella organisations the Genetic Interest Group and Contact a Family, and is affiliated to the British Liver Trust and has contact with support groups in many countries.
The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest. Find out more about updating.
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