Epilepsy Bereaved

PO Box 112
Wantage Oxon
OX12 8XT

Tel: 01235 772 850
Bereavement Contact Line: 01235 772 852
Web: www.sudep.org

Founded in 1993, Epilepsy Bereaved (EB) is a leading voluntary organisation in the UK and internationally working to prevent unnecessary deaths from SUDEP (Sudden Unexpected Death in Epilepsy) and other epilepsy deaths.

Epilepsy Bereaved is committed to preventing Sudden Unexpected Death in Epilepsy and other epilepsy deaths through research, awareness and influencing change.

EB provides a contact line enabling people who have been bereaved by epilepsy related deaths to get initial support and information. Currently there are over 1,000 calls per annum.

Core to the work of the charity is providing information and support to bereaved families, friends and carers who have lost a loved one through epilepsy.

They offer :
  • Someone to listen
  • A confidential service
  • Opportunities to speak with someone who has personal experience of an epilepsy death
  • Information about epilepsy deaths and SUDEP
  • Meetings with other families bereaved through epilepsy
  • A regular magazine
If you have lost a loved one to epilepsy, please contact their bereavement support line. The team offer support and information which could help.

Last updated on 21/07/2012