Dancing Eye Syndrome Support Trust
4 Glen Douglas Road
Greenock
Scotland
PA16 9NP
Tel: 01475 794577
Web: www.dancingeyes.org.uk
The Dancing Eye (Opsoclonus Myoclonus) Syndrome Support Trust aims to give information and telephone support to families with children with dancing eye syndrome, also known as Kinsbourne syndrome. Other activities include the following:
- Arranging an annual meeting which includes talks by medical experts in this field.
- Arranging a weekend get-together for families in the Trust.
- Producing a newsletter 4 times a year.
The following publications are available from the Trust: Dancing Eye Syndrome; Neuroblastoma and Dancing Eye Syndrome.