5 Latimer Drive
Steeple View
Laindon
Essex
SS15 4AD

Tel: 0845 094 2725
Web: www.criduchat.org.uk

Group aims

To provide support and friendship to families and carers through a network of area families throughout the UK and Ireland. They also seek to raise awareness of the syndrome amongst the medical profession, parents, carers and the public.

Group activities

They organise an annual family weekend conference which provides the opportunity to meet other families and talk to professionals. They also encourage local area gatherings, and produce two newsletters per annum. Research into the syndrome is also actively encouraged and supported.