Web: www.costellokids.co.uk

The web site is the home of the International Costello Syndrome Support Group. The support group has 90 families across the world.

It is an “e-grass-roots” parent support group that shares information about Costello Syndrome (CS) with parents and health providers around the world. Their aim is to gain a better understanding of Costello Syndrome to identify the best practices in treatment for children.

Most importantly they provide a support network through which families can share their own experiences and support each other through a mutual understanding.

On the web site you will find photos, extracts from publications, as well as a wealth of other information that may be of help to parents.