the Cornelia de Lange Syndrome Foundation

The Gatehouse
104 Lodge Lane
Grays
Essex
RM16 2UL

Tel: 01375 376439
Fax: 01375 404478
Web: www.cdls.org.uk

The CdLS Foundation UK & Ireland is part of a federation of CdLS family support groups around the world.

The CdLS Foundation exists to ensure early and accurate diagnosis of CdLS ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime.

In the UK the Foundation is run entirely by volunteers including parents and professionals.

Please see website for more information.