CJD Support Network

PO Box 346
Market Drayton
Salop
TF9 4WN

Tel (helpline): 01630 673973
Tel: 01630 673993
Web: www.cjdsupport.net

The CJD Support Network was established in 1995 by relatives of people who have died with CJD. The Network's aims are as follows:

• To offer support to individuals and families concerned with all forms of CJD.
• To offer support to people who are told that they are at a heightened risk of CJD through blood and secondary transmission.
• To provide emotional support for carers and to link families with similar experiences of all forms of CJD.
• To offer financial support for families in need.
• To provide accurate, unbiased and up-to-date information and advice about all forms of CJD.
• To provide a national helpline on all forms of CJD.
• To promote good quality care for people with all forms of CJD.
• To promote research into all forms of CJD and the dissemination of research findings.

The network produces the following publications as well as regular newsletters. Audio information is also available.

• Creutzfeld-Jakob disease (booklet)
• Familial prion disease - an introduction and explanation (booklet)
• Sporadic CJD (information sheet)
• New variant CJD (information sheet)
• Iatrogenic CJD (information sheet)
• Nurses Guidelines for CJD
• Social Work Guidelines for CJD
• Autopsy Inpatients with Suspected CJD