The CGD Research Trust

The CGD Office
Manor Farm
Wimborne St Giles
Dorset
BH21 5NL

Tel: 01725 517977
Web: www.cgd.org.uk

The CGD Research Trust is one of the world's leading specialist organisations involved with Chronic Granulomatous Disorder, a rare immune deficiency. CGD is a rare and life-threatening genetic condition which could affect 8-10 people in a million of us. People with CGD are born with a faulty gene which affects the bone marrow and means white blood cells cannot fight infections as they should. People with CGD have to take powerful antibiotics and antifungals every day. Treatments including bone marrow transplants are increasingly successful, but these are not suitable for everyone.

The CGD Research Trust:

• Funds research into effective treatments and ultimately cures for CGD, which holds the key to solving many other diseases.
• Promotes and publishes the best research into CGD.
• Provides expert support and information for people with CGD, their families and carers.
• Helps build a strong, assertive CGD community both in the UK and internationally.
• Improves the understanding of CGD by the public and medical professions.
• Provides information to anyone with an interest in CGD.

Their care services for members resident in the UK include:

• Medical advice and care from a specialist CGD nurse.
• Emotional support and listening on the telephone.
• Crisis support and preparation for major life events.
• Information, via telephone, newsletter and website including latest research findings.
• Introductions to others who can help, including CGD families.
• Organisation of social and educational events.
• Lobbying on behalf of the CGD community.
• Raising awareness of CGD through the media and other channels.