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Xeroderma Pigmentosum Support Group
2 Strawberry Close
Prestwood
Great Missenden
Bucks
HP16 0SG
Tel: 01494 890 981
Fax: 01494 864 439
Web: www.xpsupportgroup.org.uk
The Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with xeroderma pigmentosum.
The group aims to relieve the needs of persons with xeroderma pigmentosum and other related conditions, and their families.
The Group raises funds for research, gives grants for UV protective equipment and products, and assists families to attend 'Camp Sundown' or respite in a protective environment.
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