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Wolf Hirschhorn Syndrome Trust
Tel: 0845 603 5338
Web: www.whs4pminus.co.uk
Best times to phone: normal office hours (answerphone operates).
The WHST is a support group that helps parents with children with Wolf Hirschhorn syndrome . Parents are put in touch with each other and the group also liaises with doctors and professionals doing research into this condition. It also compiles information about the syndrome and can forward this to interested parties. Regional and annual meetings are held every one and two years respectively. There is a modest annual membership fee.
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