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UK Moebius Syndrome Support Group
R7, Linskill Centre
North Shields
Tyne & Wear
NE30 2AY
Tel: 0191 2964050
Fax: 0191 2964050
Best time to telephone: 10.30am - 3.00pm, Wednesday - Friday
Moebius Syndrome is characterized by a paralysis of the 6th and 7th cranial nerves resulting in a lack of facial expression, lateral eye movement and blinking. The Moebius Syndrome Support Group offers the following services.
- Newsletter
- Networking - contact with other families affected by the syndrome
- Information - including a leaflet describing possible symptoms and a website with a description of the condition, its treatment and links to other resources.
- Referrals
- Phone support
- Fundraising
- Research
- Two-yearly conference
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