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Telangiectasia Self Help Group
39 Sunny Croft
Downley
High Wycombe
Buckinghamshire
HP13 5UQ
Tel: 01494 528047
Web: www.telangiectasia.co.uk
Best time to telephone: 9am - 5pm, Monday - Friday
The Telangiectasia Self-Help Group provides information and support to people with hereditary haemorrhagic telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, their families and carers. The group links families in a similar situation so that experiences can be shared. Members (currently totalling around 600) receive an occasional newsletter which includes information on developments in the treatment of the disease. An information pack is available on receipt of an A4 SAE (with three second class stamps).
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