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Scleroderma Society
PO Box 581
Chichester
PO19 9EW
Tel (advice line): 0800 311 2756
Te (general)l: 020 7000 1925
Web: www.sclerodermasociety.co.uk
Best time to telephone: 10am - 9pm
The Scleroderma Society was founded in 1982 to help patients who suffer from the disease and their families. Features of its activities are as follows:
- National group with regional groups in some areas.
- Meetings to exchange ideas and experiences and share advice.
- Small membership fee to cover administration costs. Membership is open to anyone with an interest in the disease.
- Leaflets are available which describes the Society, the condition and its various forms including 'localised scleroderma' and 'systemic sclerosis' which can be downloaded from their website.
- Quarterly newsletter.
- Website includes message board.
- Contact lists for members who wish to be in contact with others.
- Raise awareness.
- Raise funds for scleroderma research.
- Telephone advice line.
- Email contact.
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