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Rare Cancer Alliance
Web: www.rare-cancer.org
The primary purpose of this organisation is to disseminate information and provide support to all paediatric (childhood) and rare cancer patients. Most of the members are patients or survivors. They are not medical professionals. They are people who have had to go through the process of wading through the information (or lack of information) on the internet for their own rare cancer. Their hope is that their organisation and website will save you some precious time and energy.
Their secondary purpose is to offer a consolidated venue to raise awareness and funds for rare cancer research.
Disclaimer: Patient UK has no control over the content of any external links above. Inclusion does not imply endorsement by Patient UK.
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Related pages in Patient UK
Information leaflets related to this topic (^ top of page)
Cancer - A General Overview
Cancer - What are Cancer and Tumours?
Cancer - What Causes Cancer?
Leukaemia - A General Overview
Radiotherapy
Smoking - The Facts
Staging and Grading Cancer
Stem Cell TransplantPatient Support related to this topic (^ top of page)
Acorns Children's Hospice Trust
Bob Champion Cancer Trust
CALL - Cancer Aid and Listening Line
Camp Quality UK (holidays for children with cancer
Cancer Black Care
Cancer Counselling Trust
Cancer Research UK
Cancerbackup Scotland
CancerHelp UK
Capricorn
Chai Cancer Care
Childhood Eye Cancer Trust
CHILDREN with LEUKAEMIA
Christian Lewis Trust (for children with cancer)
Christie Hospital NHS Trust Website
CLAN Cancer Support
CLIC Sargent
Dreams Come True Charity
Everyman - action against male cancer
Gynae C (Gynae Cancer Support)
James McDonald Cancer Trust
Look Good Feel Better
Macmillan Cancer Support
Maggie's Centres
Make a Wish Foundation
MAP Foundation
Marie Curie Cancer Care
Neuroblastoma Society
New Approaches to Cancer
Orchid
Over The Wall
Penny Brohn Cancer Care
Rainbow Centre For Children
Rainbow Trust Children's Charity
Rarer Cancers Forum
REACT - Rapid Effective Assistance for Children with potentially Terminal illness
Starlight Children's Foundation UK
Tak Tent Cancer Support
Tenovus Cancer Information Centre
Ulster Cancer Foundation
World Cancer Research FundMedical reference articles in PatientPlus related to this topic (^ top of page)
General Aspects of Chemotherapy
Looking After People With Cancer
Oncological Emergencies
Pain Control in Terminal Care
Tumour MarkersUK guidelines related to this topic (^ top of page)
Guidelines on Cancers
Guidelines on Childhood CancerOnline videos related to this topic (^ top of page)
Online videos on CancersRecent news items related to this topic (^ top of page)
Prostate cancer services 'vary'
Untested drugs for terminally ill
Writing 'eases stress of cancer'
Women drinkers 'face cancer risk'
'Killer' marrow transplant hope
Racial clues in bowel cancer find
Lothian men urged to get checked for prostate cancer
Scientists attack 'breakthrough' cancer drugs
Are drug trials stopped too early?
GPs failing to diagnose cancer symptoms, warns Government expert
Gum disease link to cancer risk
Gum disease link to cancer risk
Active men cut cancer death risk
Exercise 'prevents and treats' cancer
Cancer survivors 'left in limbo'
Food on child cancer wards 'poor'
Teen cancer diagnoses 'delayed'
Food colourant may cut cancer
Cancer deaths 'higher in north'
Clone cell cancer 'cure' hailed
Cloned immune cells treat skin cancer
Charity props up NHS cancer care
Look good, fight cancer
Central NHS cancer research database launched
Tories promise NHS targets revamp
NHS blocks cancer drug in price row
NHS IT mess hits cancer patients
Cancer cure trials move from mice to men
Miracle diet from the Med
Cancers linked to lifestyle still on rise ' especially in Scotland
Mediterranean diet 'cuts cancer'
Mediterranean diet 'cuts cancer risk'
I've faced death twice so every day is precious
Cancer: seeking solace online
Man becomes miracle dad 25 years after cancer treatment made him infertile
Cancer survivor numbers reach 2m
Dying wish
UK 'trailing other countries on cancer survival rates'
Cancer expert: cost of NHS 'pill culture' too high
Smoking risk of cancer survivors
'All-clear' patients have cancer
Seven out of ten children with cancer now survive
Drug appeal procedures 'chaotic'
'Immune' to cancer: The astonishing dwarf community in Ecuador who could hold the key to a cure
'My mother died with dignity'
Experts in drug 'ration' warning
NHS funding 'risk to cancer care'
Rugby players from across the globe scrum together to fund cancer fight
Hopes raised for block on cancer
Cancer enzyme structure uncovered
NHS 'spending lottery persists'
Study finds huge differences in cancer health spending
Why a Mediterranean diet 'protects against all major diseases'
Benefits of Mediterranean diet
Gene tests 'create undue stress'
Mobile phone use 'raises children's risk of brain cancer fivefold'
Cancer drug access varies widely
Cancer experts hope tiny 'torpedo' will blast away tumours
Vitamin 'may blunt cancer drugs'
Breakthrough diagnostic tech
Vitamin C affects anti-cancer drugs
Scientists spurn 'unfashionable' cancers
UK death rates are plummeting
Virtual healing
Grandmother wins her battle for cancer drug
Common fibre a 'true superfood'
The cancer map of the world
A storm in a jam jar
Better detection and drugs will cut cancer death rate by a sixth
Smoking kills 227 every day
Scientists discover protein that stops cells becoming vulnerable to cancer
UK poorest 'living shorter lives'
Mark Easton
Purple tomato 'may boost health'
Cancer plan aims to reduce deaths
Purple tomatoes "beat cancer"
Shape shift rules cancer spread
Cancer patients get right to buy 'top-up' drugs
'Think radically'
Cancer genetic blueprint revealed
Scots work-related cancers up
Black cohosh linked to spread of cancer
Adopting a healthy lifestyle 'helps cancer suffers after diagnosis'
'Supermice' who can resist cancer and age almost half as fast as normal
Our health service is WORSE than Estonia's
More drugs on market for cancer patients
Doctors and patients failing to spot cancer symptoms early enough Government tsar warns
Vitamins A and E 'do not help prevent cancer'
Exercise cuts the risk of cancer - but only if you get at least seven hours sleep, study finds
Revealed: Star Wars-style 'light sabre' to destroy cancer cells
Advice to help 'child survivors'
Cancer patients' sperm cash claim
Cancer death rates 'inequality'
Teens 'miss out' on cancer trials
Learning to live from dying son
Services 'fail' cancer children
Single cancer cell 'poses danger'Links to other selected websites related to this topic (^ top of page)
Cancer
Cancer in Children
TumoursPoems and stories related to this topic (^ top of page)
Stories to Read in the Waiting Room ...Other - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
*** NEW *** Patient UK Newspaper
Cancers news
Childhood Cancer newsMedical equipment products related to this topic (^ top of page)

Books related to this topic (^ top of page)
Cancer (Challenging) (2nd Edition)
Cancer (Taking Control of)
Cancer (Understanding)
Cancer : British Medical Association's Family Doctor Series
Cancer Guide for Men (the)
Cancer. The Facts
Cancer: At Your Fingertips (3rd Edition)
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Disclaimer: Patient UK has no control over the content of any external links above. Inclusion does not imply endorsement by Patient UK.
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