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National Lichen Sclerosus Support Group
PO Box 5830
Lyme Regis
Dorset
DT7 3ZU
Web: www.lichensclerosus.org
A sufferer of lichen sclerosus (LS) established the National Lichen Sclerosus Support Group (NLSSG) in 1997 with the following aims.
- To relieve the sense of isolation that patients experience as a result of diagnosis of LS.
- To offer support and current available information.
- To raise awareness of the disease, particularly amongst GPs.
- To produce information on specific topics (eg sexual difficulties) as well as general information and sharing experiences.
The NLSSG produces an information leaflet which includes sections on the following.
- Description of disease and symptoms.
- Diagnosis and treatment.
- Vulval care.
- LS and men; LS and children.
- Patient information from a consultant dermatologist.
- Information on the NLSSG.
Membership of the group is free but requires donations to cover costs. Please contact the above address for details.
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