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Ichthyosis Support Group
PO Box 7913
Reading
RG6 4ZQ
Tel: 0845 602 9202
Web: www.ichthyosis.org.uk
The Ichthyosis Support Group (ISG) was founded in March 1997 by a group of individuals affected by ichthyosis to create a network of parents, sufferers and medics.
The executive committee that looks after the day to day running of the support group is comprised of people with ichthyosis and relatives of people with ichthyosis, all of whom give their time voluntarily.
They aim:
- To preserve and protect the health of and to relieve persons affected by ichthyosis and any associated condition.
- To advance the education of the medical profession and the general public on the subject of ichthyosis and its implications for the family.
- To promote research into the management of ichthyosis and to publish the useful results thereof, and to support organisations promoting research into ichthyosis.
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