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Haemochromatosis Society
Hollybush House
Hadley Green
Barnet
EN5 5PR
Tel: 020 8449 1363
Fax: 020 8449 1363
Web: www.haemochromatosis.org.uk
Best time to telephone: Monday - Friday, 9am - 5pm
The aims and activities of the Haemochromatosis Society include the following.
- To support people with haemochromatosis by providing help with their problems.
- To ensure brothers, sisters and children are tested in due time.
- A quarterly newsletter is published giving news and views from members in the UK and from around the world. A handbook is provided for members.
- Opportunities to meet other members living nearby are arranged if they wish.
- To promote awareness among the health professions, patients and their families, the general public and policy makers so that the condition may be diagnosed and treated in time.
- There is also a need to overcome the misconceptions that haemochromatosis is rare, that only middle-aged men are at risk, and that women are seldom affected until their menopause.
- To provide resource material for the allied medical professions and encourage research.
- The Society keeps up to date on the latest studies of cause, diagnosis and treatment. The Society belongs to the umbrella organisations the Genetic Interest Group and Contact a Family, and is affiliated to the British Liver Trust and has contact with support groups in many countries.
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