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Gaucher's Association
3 Bull Pitch
Dursley
Gloucestershire
GL11 4NG
Tel: 01453 549 231
Web: www.gaucher.org.uk
Best time to telephone: 9am - 3pm, Monday - Friday (answerphone at other times).
The Gaucher's Association was formed in 1991 to meet the needs of those suffering from Gaucher's disease, an inherited enzyme disorder. The Association aims to:
- Provide information about the disorder and keep families and specialist advisers up-to-date with latest developments.
- Encourage the availability of treatment including enzyme replacement therapy.
- Keep families in touch for support.
- Actively encourage medical research.
A newsletter is published twice-yearly and an information pack is sent out to all new members (sufferers and families) and medical advisers.
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