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ACT (Association for Children's Palliative Care)
Orchard House
Orchard Lane
Bristol
BS1 5DT
Tel (Helpline): 0845 108 2201
Tel (Information/Admin): 0117 922 1556
Fax: 0117 930 4707
Web: www.act.org.uk
Best time to telephone: 9am - 5pm, Monday - Friday (answerphone other times)
ACT is a national charity seeking to promote excellence and equity in the provision of care and support for all children and young people with life-threatening or life-limiting conditions and their families. It campaigns for improved provision of children's palliative care services, supports professionals, and informs and empowers families.
ACT's publications include the following:
- General information leaflet on ACT.
- ACT NOW newsletter issued every couple of months to ACT members.
- ACT 4 families newsletter is free to family members.
- Palliative care for young people, aged 13 - 24 years.
- Guide to the development of children's palliative care.
- Assessment of children with life-limiting conditions and their families - a guide to effective care planning.
- Voices for change - a research summary of the needs of those caring for terminally ill children.
- ACT information pack for families.
- Integrated multi-agency care pathways for children with life threatening and life limited conditions.
- PaedPalLit - an international research journal in children's palliative care.
- The transition care pathway.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.