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Alpha-1 Antitrypsin Deficiency
UK sources of information and / or support
Alpha 1 Antitrypsin Alliance
Aims to raise the profile of A1AD amongst the medical profession and to assist in the early identification / diagnosis of individuals with the disorder.
Alpha-1 UK
Offers support and advice to those with Alpha-1 Antitrypsin Deficiencyin the UK.
Alpha-1-antitrypsin deficiency
Article on Alpha-1-antitrypsin deficiency from the Children's Liver Disease Foundation
Northern Primary Care Genetics Website
A website primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.
British Liver Trust
Provides support to people with liver conditions.
Children's Liver Disease Foundation
Provides support to children and families affected by childhood liver diseases.
British Lung Foundation
The British Lung Foundation provides information about alpha-1-antitrypsin deficiency.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest. Find out more about updating.
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Links to other pages within Patient UK which are related to this topic:
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Related pages in Patient UK
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Alpha-1 UKPatientPlus articles related to this topic (^ top of page)
Alpha-1-Antitrypsin DeficiencyPatient UK Newspaper (^ top of page)
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