Sign inDementia
UK sources of information and / or support
Patient UK
Has an information leaflet on Memory Loss and Dementia.
Alzheimer's Disease Society
Information and help for people with dementia and their carers.
Dementia UK
A national charity, committed to improving quality of life for all people affected by dementia.
Alzheimer's and Dementia
Information from the Royal College of Psychiatrists.
Alzheimer's Scotland - Action on Dementia
Information and help for people with dementia and their carers.
National Dementia Strategy
A document that sets out initiatives designed to make the lives of people with dementia, their carers and families better and more fulfilled. From the Department of Health.
Who cares? Information and Support for the Carers of People with Dementia
Department of Health policy and guidance for carers which gives information about dementia, caring for someone with dementia, and the help available to carers.
Introduction to Mental Health
Directgov is the website of the UK government for its citizens, providing information and online services for the public all in one place. They provide a wide range of information including one in this area.
Dementia
Information from the Mental Health Foundation.
Dementia Choices Project
Set up to explore self-directed support for people living with dementia, their families and friends, and staff who support them. Includes a series of short films explaining self-directed support (including personal budgets and direct payments) in social care for people with dementia, their families and friends, and staff who support them.
Carers of people with dementia
Healthtalkonline, is an award-winning charity website, which lets you share in other people's experiences of health and illness. The information is based on qualitative research into patient experiences led by experts at the University of Oxford.
The Lewy Body Society
The charity's mission is to raise awareness of Dementia with Lewy bodies for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.
Alzheimer's disease - donepezil, galantamine, rivastigmine (review) and memantine
A patient guide to complement the NICE national guideline for health professionals called Alzheimer's disease - donepezil, galantamine, rivastigmine (review) and memantine.
Dementia
A patient guide to complement the NICE national guideline for health professionals called Dementia.
Dementia overview
NICE Pathways are for people who use NICE guidance. This includes health and social care professionals, public health experts, those who commission or provide health and social care services, employers and members of the public.
Dementia
A patient guide to complement the SIGN national guideline for health professionals.
Medicine Guide for Dementia
Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat dementia.
MIND
MIND, one of Britain's leading mental health charities provides information on dementia.
Dementia Research Centre
Based at the National Hospital for Neurology and Neurosurgery, is one of the UK's leading centres for clinical research into dementia, and the hospital is the lead centre for trialling new drugs to slow the progression of Alzheimer's disease (which causes the majority of dementia).
Pick's Disease Support Group (PDSG)
Provides information and support for people affected by Pick's disease and their carers. The PDSG is under the umbrella of the National Hospital for neurology and Neorosurgery Development Foundation.
Next of Kin
A company providing a service to individuals so that next of kin can be contacted in cases of emergency. There is also a facility to hold medical information to be accessed by professionals if necessary. A range of services are available for children, those living alone, those with medical conditions and others.
AgeCare
Runs five residential and nursing homes in various parts of the country, for older people who fall outside the age and income range provided for by local authority homes. These homes range from Florence Nightingale's parents' house in Derbyshire to a specialised nursing unit in Surrey for people with dementia.
Alzheimer's Research UK
This site mainly contains information on current research projects and research news in the UK. It also includes a section on Alzheimer's facts.
Mental capacity and the law
Information from DirectGov. Includes information such as; Making legal arrangements in case you lose mental capacity; What is a Lasting Power of Attorney? Making decisions for someone else; How to decide if a person lacks mental capacity; etc
Dementia
Information from NHS Choices - the government's patient information portal.
Alzheimer's disease
Information from BUPA.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.