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Non-UK Patient Self Help and Support Group Information

Patient apple icon (PatientApple.gif) American Self-Help Group Clearinghouse

(US site) Keyword-searchable database of over one thousand member-run American "self-help" support groups for any specific illness, disability, addiction, bereavement situation, parenting, caregiver concern, abuse, or other stressful life situation. Listing of local non-profit self-help group clearinghouses worldwide. Suggestions for starting both community and online groups, research studies, a registry for those trying to start new nationals or internationals that don't yet exist in the world, and more.

Patient apple icon (PatientApple.gif) Genetic and Rare Conditions Site

(US site) From University of Kansas Medical Center. Professionals, educators, and individuals seeking information on conditions or birth defects will find information through this list, or through national organizations, international organizations, categories of conditions, consulting a genetic counsellor / clinical geneticist, kids sites or other sites.

Patient apple icon (PatientApple.gif) Healthfinder.gov

(US site) Is a gateway consumer health and human services information web site from the United States government. Healthfinder.gov can lead you to "support and self-help groups, as well as the government agencies and not-for-profit organizations that produce reliable information for the public".

Patient apple icon (PatientApple.gif)  International Alliance of Patients' Organizations (IAPO)

(International site) The IAPO website is the place for patients' organizations around the world to interact with one another and with other stakeholders in healthcare, including health professionals, policy makers and representatives of the pharmaceutical, medical devices, biotechnology and insurance industries. The website has many special features, including a Global Directory of Patients' Organizations; The Patients' Exchange (resources and support for patients' organizations); The Patient's Network magazine online; and a Patient-Centred Healthcare Portal.

Patient apple icon (PatientApple.gif) Irish Medical Directory

(Ireland) A comprehensive directory of Irish Healthcare.

Patient apple icon (PatientApple.gif) MedHelp

(US site) Their Patient Network section is for putting patients in touch with other patients, for the purpose of sharing information & support.

Patient apple icon (PatientApple.gif) NORD - National Organisation for Rare Disorders

(US site) NORD is a federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities.

Comprehensive patient resources are available at www.patient.co.uk














Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.

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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.

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PS - Health and Poverty

Perhaps the biggest cause of ill health in the world is poverty. Help to Make Poverty History. For example, why not lend some of your money to disadvantaged communities to enable them to trade their way out of poverty through schemes such as Shared Interest.

See also MAKEPOVERTYHISTORY North East for details and links to campaigns against poverty.

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