Transplants and Organ Donation

UK sources of information and / or support

 Organ Donation

Everything you need to know about being an organ donor.

 Transplant Support Network

A nationwide network of volunteer transplant patients and their carers, who provide locally based support for others coping with transplantation. The aim of the Transplant Support Network is to introduce any patient, carer or family member to others who have been through a similar experience.

 The Transplant Trust

The Transplant Trust, until recently called Transplants in Mind, was formed in 1990 to provide support and information for the transplant community - whether patients, families or other charities in the field.

 Kidney Transplantation

Information provided by the Royal Infirmary of Edinburgh Renal Unit for patients and for doctors who are not renal specialists. This site includes information about many kidney problems including Transplantation.

 Royal Cornwall Hospital Renal Units Patients and Carers Web Site

Site geared to patients at the above hospital but includes general information on a range of kidney issues including Transplantation.

 UK Blood Transfusion and Tissue Transplantation Services

Information for all blood donors but may be of interest to all.

 Gift - The Children's Transplant Charity

Gift is a registered national charity that offers support to children and families who are affected by transplantation. They aim to provide both emotional and practical support throughout the journey of transplantation.

 Scottish Liver Transplant Unit

Their web site has been prepared to give you some information about the Scottish Liver Transplant Unit and how it operates, its goals and the services it offers.

 Tissue Donation and Transplantation

This site is provided by the Bristol Tissue Co-ordination Service at the Bristol Eye Hospital as a resource for healthcare professionals and the general public. It provides information about tissue donation, the work of the Bristol Eye Bank and Bristol Heart Valve Bank, as well as how to register your wishes. You can also read the real life stories of somet issue transplant recipients and donor families.

 Liver Transplant Support

A site designed to inform prospective liver transplant patients of what to expect by hearing from those that have been there.

 Transplant Unit of Addenbrooke's Hospital

Includes information for patients about organ donation, kidney, liver, small bowel and pancreas transplants.

 Transplant Kids Website

A child friendly site about organ transplants.

 Anthony Nolan Trust

Maintains the UK's largest register of potential volunteer donors willing to donate their blood stem cells should their tissue type match that of a patient in need of a transplant to help fight leukaemia or related diseases of the immune system.

 Living-donor liver transplantation

A patient guide to complement the NICE national guideline for health professionals called Living-donor liver transplantation.

 Laparoscopic live donor simple nephrectomy

A patient guide to complement the NICE national guideline for health professionals called Laparoscopic live donor simple nephrectomy.

  Autologous Pancreatic Islet Cell Transplantation for Improved Glycaemic Control After Pancreatectomy

A patient guide to complement the NICE national guideline for health professionals called Autologous Pancreatic Islet Cell Transplantation for Improved Glycaemic Control After Pancreatectomy .

 Corneal Endothelial Transplantation

A patient guide to complement the NICE national guideline for health professionals called Corneal Endothelial Transplantation.

 Information and Advice on Skin Cancer for Patients Awaiting an Organ Transplant

Information from the British Association of Dermatologists.

  Umbilical cord derived stem cell transplants

From the 'Behind the Medical Headlines' website developed to provide authoritative and independent expert commentaries on topical medical matters reported in the international media. Produced by the Royal College of Physicians of Edinburgh and Royal College of Physicians and Surgeons of Glasgow.

  Umbilical Cord-Derived Stem Cell Transplants – What’s Changed in Three Years

From the 'Behind the Medical Headlines' website developed to provide authoritative and independent expert commentaries on topical medical matters reported in the international media. Produced by the Royal College of Physicians of Edinburgh and Royal College of Physicians and Surgeons of Glasgow.

 Liver transplants: Live donor liver transplantation

From the 'Behind the Medical Headlines' website developed to provide authoritative and independent expert commentaries on topical medical matters reported in the international media. Produced by the Royal College of Physicians of Edinburgh and Royal College of Physicians and Surgeons of Glasgow.

 Bone Marrow and Stem Cell Transplantation

The Leukemia Research Fund provides a detailed leaflet on Bone Marrow and Stem Cell Transplantation.

 Cambridge University NHS Hospital

Cambridge University Hospital NHS Foundation Trust provide a wide range of patient information leaflets including one in the following areas:

• Pancreas transplant
• Kidney transplant biopsy
• Living kidney donation
• Paired/pooled kidney donation
• Transplants: the risk to the skin

 Renal transplantation - immunosuppressive regimens for children and adolescents

A patient guide to complement the NICE national guideline for health professionals called Renal transplantation - immunosuppressive regimens for children and adolescents.

 Renal transplantation - immuno-suppressive regimens (adults)

A patient guide to complement the NICE national guideline for health professionals called Renal transplantation - immuno-suppressive regimens (adults).

 Living donor lung transplantation for end-stage lung disease

A patient guide to complement the NICE national guideline for health professionals called Living donor lung transplantation for end-stage lung disease.

  Organ Preservation (renal) - Machine Perfusion and Static Storage

A patient guide to complement the NICE national guideline for health professionals called
Organ Preservation (renal) - Machine Perfusion and Static Storage.

 Medicine Guide for Bone Marrow Transplantation

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project. Includes detailed information about medicines used to treat bone marrow transplantation.

 Medicine Guide for Heart Transplantation

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Medicine Guide for Kidney Transplantation

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Medicine Guide for Liver Transplantation

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Medicine Guide for Organ Transplantation

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Medicine Guide for Stem-Cell Transplantation

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Organ donation

Information from NHS Choices - the government's patient information portal.

 Bone marrow donation

Information from NHS Choices - the government's patient information portal.

 Bone marrow transplant

Information from NHS Choices - the government's patient information portal.

 Kidney transplant

Information from NHS Choices - the government's patient information portal.

 Small bowel transplant

Information from NHS Choices - the government's patient information portal.

 Cornea transplant

Information from NHS Choices - the government's patient information portal.

 Liver transplant

Information from NHS Choices - the government's patient information portal.

 Lung transplant

Information from NHS Choices - the government's patient information portal.

 Heart transplant

Information from NHS Choices - the government's patient information portal.

 Heart-lung transplant

Information from NHS Choices - the government's patient information portal.

 Pancreas transplant

Information from NHS Choices - the government's patient information portal.

 Bone marrow (stem cell) transplantation

Information from BUPA.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.