Thalassaemia

UK sources of information and / or support

 UK Thalassaemia Society

Advice and support for people with thalassaemia.

 NHS Sickle Cell & Thalassaemia Screening Programme

The NHS Sickle & Thalassaemia Screening Programme has been set up to implement "effective and appropriate screening programmes for women and children including a new national linked antenatal and neonatal screening programme for haemoglobinopathy and sickle cell disease".

 Carrying Alpha Zero Thalassaemia

Information from the Northern Primary Care Genetics Webite which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.

 Carrying Alpha Plus Thalassaemia

Information from the Northern Primary Care Genetics Webite which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.

 Probably Carrying Alpha Thalassaemia (Information for patients whose ancestors ARE black Africans or black African Carribbeans

Information from the Northern Primary Care Genetics Webite which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.

 Probably Carrying Alpha Thalassaemia (Information for patients whose ancestors are NOT black Africans or black African Carribbeans)

Information from the Northern Primary Care Genetics Webite which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.

 Carrying Beta Thalassaemia

Information from the Northern Primary Care Genetics Webite which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.

 Carrying Delta-Beta Thalassaemia

Information from the Northern Primary Care Genetics Webite which is primarily aimed at those working in primary care, however, they offer a patient information leaflet in this area.

 Medicine Guide for Thalassaemia

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Health Talk Online

Database of Individual Patient Experiences is an Oxford based registered charity. It is a database of audio, video and transcript of interviews with patients experiencing a particular illness or health problem. Includes a module on screening for thalassaemia.

 Beta thalassaemia

Information from BUPA.

 Thalassaemia

Information from NHS Choices - the government's patient information portal.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.