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Sickle Cell Disease
UK sources of information and / or support
Sickle Cell Society
A leading national health charity working for people with Sickle Cell Disease.
Sickle Cell & Thallasaemia Support Project
This support group, based in Wolverhampton, aims to provide services in order to enable individuals to have informed choices so that they can make decisions about their own lives.
NHS Sickle Cell & Thalassaemia Screening Programme
The NHS Sickle & Thalassaemia Screening Programme has been set up to implement "effective and appropriate screening programmes for women and children including a new national linked antenatal and neonatal screening programme for haemoglobinopathy and sickle cell disease".
DIPEx
DIPEx (Database of Individual Patient Experiences) is an Oxford based registered charity. It is a database of audio, video and transcript of interviews with patients experiencing a particular illness or health problem. Includes a module on screening for Sickle Cell Disease.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Information leaflets related to this topic (^ top of page)
Sickle CellPatient Support related to this topic (^ top of page)
Sickle Cell SocietyMedical reference articles in PatientPlus related to this topic (^ top of page)
Flying with Medical Conditions Sickle-Cell Disease and Sickle Cell AnaemiaUK guidelines related to this topic (^ top of page)
Guidelines on Sickle Cell DisorderOnline videos related to this topic (^ top of page)
Online videos on Sickle Cell DisorderRecent news items related to this topic (^ top of page)
Call to treat sickle cell betterOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
Medical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.