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Muscular Dystrophy
UK sources of information and / or support
Muscular Dystrophy Campaign
Contains authoritative information on neuromuscular conditions: Medical research progress; fact sheets; adaptations, aids and equipment; personal relationships and recreation; links to related sites; guestbook.
Muscular Dystrophy (FSH) Support Group
Aims to improve the quality of life for all those with FSH (Facio Scapulo Humeral MD) and those who care for them. Offers support and encouragement to families and individuals who have FSH.
Action Duchenne
A charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy. Aims:
- to raise funds for UK research projects; to campaign for Governments support to gain equal funding for research in line with other fatal diseases
- to educate people in our local communities on the effects and causes of DMDand BMD
- to advocate on behalf of our sons who have little chance to voice their needs as many of them die in late teens
- to provide a community website to allow parents and supporters the chance to organise support in their communities.
Muscular Dystrophy Forum
Forum for people who are affected by Muscular dystrophy, a place were people can talk to others in a similar situation.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Information leaflets related to this topic (^ top of page)
Duchenne Muscular Dystrophy Muscular Dystrophies - An OverviewPatient Support related to this topic (^ top of page)
Action Duchenne Duchenne Family Support Group Muscular Dystrophy CampaignMedical reference articles in PatientPlus related to this topic (^ top of page)
MyopathiesRecent news items related to this topic (^ top of page)
Viagra 'aids muscular dystrophy'Other - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
Medical equipment products related to this topic (^ top of page)
Books related to this topic (^ top of page)
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.