Muscular Dystrophy

UK sources of information and / or support

 Muscular Dystrophy Campaign

Contains authoritative information on neuromuscular conditions: Medical research progress; fact sheets; adaptations, aids and equipment; personal relationships and recreation; links to related sites; guestbook.

 Muscular Dystrophy (FSH) Support Group

Aims to improve the quality of life for all those with FSH (Facio Scapulo Humeral MD) and those who care for them. Offers support and encouragement to families and individuals who have FSH.

 Action Duchenne

A charity set up by parents and supporters of boys with Duchenne and Becker Muscular Dystrophy. Aims:

• to raise funds for UK research projects; to campaign for Governments support to gain equal funding for research in line with other fatal diseases
• to educate people in our local communities on the effects and causes of DMDand BMD
• to advocate on behalf of our sons who have little chance to voice their needs as many of them die in late teens
• to provide a community website to allow parents and supporters the chance to organise support in their communities.

 Muscular Dystrophy Forum

Forum for people who are affected by Muscular dystrophy, a place were people can talk to others in a similar situation.

  Muscular Dystrophy as a Long Term Condition in Young People

Youthhealthtalk is a website about young people’s real life experiences of health and lifestyle. It is not just a website about the medical facts, this is about real people and real lives.

 Duchenne muscular dystrophy

Information from BUPA.

 Muscular dystrophy

Information from NHS Choices - the government's patient information portal.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.