Motor Neurone Disease

UK sources of information and / or support

 Patient UK

Has an information leaflet called Motor Neurone Disease

 Motor Neurone Disease Association

The only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them. Their mission is to ensure that every single person affected by MND can secure the care and support they need and to promote research that will lead to effective treatments and a cure for MND

 Scotttish Motor Neurone Disease Association

Works for the MND community in a number of ways:including offering care and support to anyone diagnosed with MND, no matter where they live in Scotland; by providing accurate and up to date information on all aspects of MND and by promoting and funding research, particularly research that will lead to improved care and quality of life for those living with MND .

 DIPEx

DIPEx (Database of Individual Patient Experiences) is an Oxford based registered charity. It is a database of audio, video and transcript of interviews with patients experiencing a particular illness or health problem. Includes a module on motor neurone disease.

 Medicine Guide for Motor Neurone Disease

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

  Medicine Guide for Amyotrophic Lateral Sclerosis (the common type of motor neurone disease)

Provides detailed information about the drugs available to treat this condition. Medicine Guides provide reliable information about medicines, conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 British Brain and Spine Foundation

Have very good information booklets which you can download, including one called 'Motor Neurone Disease'

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.