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Motor Neurone Disease
UK sources of information and / or support
Patient UK
Has an information leaflet called Motor Neurone Disease
Motor Neurone Disease Association
The only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them. Their mission is to ensure that every single person affected by MND can secure the care and support they need and to promote research that will lead to effective treatments and a cure for MND
Scotttish Motor Neurone Disease Association
Works for the MND community in a number of ways:including offering care and support to anyone diagnosed with MND, no matter where they live in Scotland; by providing accurate and up to date information on all aspects of MND and by promoting and funding research, particularly research that will lead to improved care and quality of life for those living with MND .
DIPEx
DIPEx (Database of Individual Patient Experiences) is an Oxford based registered charity. It is a database of audio, video and transcript of interviews with patients experiencing a particular illness or health problem. Includes a module on motor neurone disease.
Medicine Guide for Motor Neurone Disease
Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.
Medicine Guide for Amyotrophic Lateral Sclerosis (the common type of motor neurone disease)
Provides detailed information about the drugs available to treat this condition. Medicine Guides provide reliable information about medicines, conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.
British Brain and Spine Foundation
Have very good information booklets which you can download, including one called 'Motor Neurone Disease'
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Information leaflets related to this topic (^ top of page)
Motor Neurone DiseasePatient Support related to this topic (^ top of page)
Motor Neurone Disease Association
Scottish Motor Neurone Disease AssociationMedical reference articles in PatientPlus related to this topic (^ top of page)
Motor Neurone Disease (MND)UK guidelines related to this topic (^ top of page)
Guidelines on Motor Neurone DiseaseOther - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
Medical equipment products related to this topic (^ top of page)

Books related to this topic (^ top of page)
Motor Neurone Disease : A Family Affair
Motor Neurone Disease: Answers At Your Fingertips
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Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
