Sign inMyalgic Encephalomyelitis / Chronic Fatigue Syndrome
UK sources of information and / or support
Patient UK
Has an information leaflet called Chronic Fatigue Syndrome / ME.
A Report of the CFS/ME Working Group.
Report to the Chief Medical Officer of an independent working group. This report outlines how the NHS might improve health and social care for people who suffer from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME).
Chronic Fatigue Syndrome / Myalgic Encephalomyelitis
A patient guide to complement the NICE guideline of the same name for health professionals.
Action for ME (Myalgic Encephalomyelitis)
Patient's organisation run by and for people with ME.
ME Association
Supports all those affected by Myalgic Encephalomyelitis (ME) by providing specialist information and advice services, literature and self-help groups, promotes research, increases public awareness of ME.
The Young ME Sufferers Trust
Free information and publications for young people with ME,their families, and the professionals who care for them. Well known patrons. Site featuresself-help, and also professional guides for both medical and educationalprofessionals. The Trust also runs an Advice Line and a ProfessionalsReferral Service.
reMEmber (The Chronic Fatigue Society)
Helping people with ME (myalgic encephalomyelitis) - (chronic fatigue syndrome) - get the best possible treatment and advice to enable them to lead happy and healthy lives.
Association of Youth with M.E.
AYME (pronounced 'aim') is UK-based independent registered charity dedicated to giving help, support and vital contact to children and young people with Myalgic Encephalomyelitis (M.E).
ME Action UK
Mailing list and includes medical and political articles about ME.
ME / CFS
ME/CFS articles, Capita Selecta, Medical Fact sheet, Book Reviews and other relevant medical information.
MERGE
MERGE is the Myalgic Encephalomyelitis Research Group for Education and Support. The charity's principal aim is to commission and fund scientific investigation into the causes, consequences, and treatment of myalgic encephalomyelitis (ME) and related conditions. On this site you will find research news, educational literature, and information on accessing social care services and support.
The 25% M.E. Group
Support for those severely affected by M.E.
Young Action Online
YA Online is a personal initiative of Jane Colby and Mark Colby who wanted to create a concentrated resource of solid information from creditable sources for young people with ME, their families and professionals, using the internet to make that information widely and freely available.
Northern Ireland ME Association
Provides support and information for those affected with ME.
Edinburgh ME Self help Group
Provides support and information for those affected with ME.
Oxfordshire ME Group for Action (OMEGA)
A support and campaign group for people with ME/CFS.
Chronic Fatigue and Chronic Fatigue Syndrome
A Practical Self Help Guide produced by Vincent Deary of The Chronic Fatigue Syndrome Research and Treatment Unit, Kings College Hospital.
SupportME
UK based resource for sufferers of ME / Chronic Fatigue Syndrome. Research, News, Chat, Guide etc.
Foggy Friends
Offers friendship, support and fun through a website, forum and chat room. Carers and supporters are also encouraged to join - everyone who is affected by ME/CFS is welcome.
Chronic Fatigue Syndrome
Information from NHS Choices - the government's patient information portal.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.