Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

UK sources of information and / or support

 Patient UK

Has an information leaflet called CFS/ME

 A Report of the CFS/ME Working Group.

Report to the Chief Medical Officer of an independent working group. This report outlines how the NHS might improve health and social care for people who suffer from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME).

 Action for ME (Myalgic Encephalomyelitis)

Patient's organisation run by and for people with ME.

 ME Association

Supports all those affected by Myalgic Encephalomyelitis (ME) by providing specialist information and advice services, literature and self-help groups, promotes research, increases public awareness of ME.

 Chronic Fatigue Syndrome: Altered Physiology and Genetic Influences

From the 'Behind the Medical Headlines' website developed to provide authoritative and independent expert commentaries on topical medical matters reported in the international media. Produced by the Royal College of Physicians of Edinburgh and Royal College of Physicians and Surgeons of Glasgow.

 The Young ME Sufferers Trust

Free information and publications for young people with ME,their families, and the professionals who care for them. Well known patrons. Site featuresself-help, and also professional guides for both medical and educationalprofessionals. The Trust also runs an Advice Line and a ProfessionalsReferral Service.

 Association of Youth with M.E.

AYME (pronounced 'aim') is UK-based independent registered charity dedicated to giving help, support and vital contact to children and young people with Myalgic Encephalomyelitis (M.E).

 Chronic fatigue syndrome / Myalgic encephalomyelitis

A patient guide to complement the NICE national guideline for health professionals on the same topic.

 ME Action UK

Mailing list and includes medical and political articles about ME.

 ME / CFS

ME/CFS articles, Capita Selecta, Medical Fact sheet, Book Reviews and other relevant medical information.

 MERGE

MERGE is the Myalgic Encephalomyelitis Research Group for Education and Support. The charity's principal aim is to commission and fund scientific investigation into the causes, consequences, and treatment of myalgic encephalomyelitis (ME) and related conditions. On this site you will find research news, educational literature, and information on accessing social care services and support

 The 25% M.E. Group

Support for those severely affected by M.E.

 Young Action Online

YA Online is a personal initiative of Jane Colby and Mark Colby who wanted to create a concentrated resource of solid information from creditable sources for young people with ME, their families and professionals, using the internet to make that information widely and freely available.

 Northern Ireland ME Association

Provides support and information for those affected sith ME.

 Chronic Fatigue and Chronic Fatigue Syndrome

A Practical Self Help Guide produced by Vincent Deary of The Chronic Fatigue Syndrome Research and Treatment Unit, Kings College Hospital.

 SupportME

UK based resource for sufferers of ME / Chronic Fatigue Syndrome. Research, News, Chat, Guide etc.

 Foggy Friends

Offers friendship, support and fun through a website, forum and chat room. Carers and supporters are also encouraged to join - everyone who is affected by ME/CFS is welcome

 British Association for Behavioural and Cognitive Pyschotherapies

Provides a leaflet on Chronic Fatigue Syndrome.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.