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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

UK sources of information and / or support

Patient apple icon (PatientApple.gif) Patient UK

Has an information leaflet called Chronic Fatigue Syndrome / ME.

Patient apple icon (PatientApple.gif) A Report of the CFS/ME Working Group.

Report to the Chief Medical Officer of an independent working group. This report outlines how the NHS might improve health and social care for people who suffer from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME).

Patient apple icon (PatientApple.gif) Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

A patient guide to complement the NICE guideline of the same name for health professionals.

Patient apple icon (PatientApple.gif) Action for ME (Myalgic Encephalomyelitis)

Patient's organisation run by and for people with ME.

Patient apple icon (PatientApple.gif) ME Association

Supports all those affected by Myalgic Encephalomyelitis (ME) by providing specialist information and advice services, literature and self-help groups, promotes research, increases public awareness of ME.

Patient apple icon (PatientApple.gif) The Young ME Sufferers Trust

Free information and publications for young people with ME,their families, and the professionals who care for them. Well known patrons. Site featuresself-help, and also professional guides for both medical and educationalprofessionals. The Trust also runs an Advice Line and a ProfessionalsReferral Service.

Patient apple icon (PatientApple.gif) reMEmber (The Chronic Fatigue Society)

Helping people with ME (myalgic encephalomyelitis) - (chronic fatigue syndrome) - get the best possible treatment and advice to enable them to lead happy and healthy lives.

Patient apple icon (PatientApple.gif) Association of Youth with M.E.

AYME (pronounced 'aim') is UK-based independent registered charity dedicated to giving help, support and vital contact to children and young people with Myalgic Encephalomyelitis (M.E).

Patient apple icon (PatientApple.gif) ME Action UK

Mailing list and includes medical and political articles about ME.

Patient apple icon (PatientApple.gif) ME / CFS

ME/CFS articles, Capita Selecta, Medical Fact sheet, Book Reviews and other relevant medical information.

Patient apple icon (PatientApple.gif) MERGE

MERGE is the Myalgic Encephalomyelitis Research Group for Education and Support. The charity's principal aim is to commission and fund scientific investigation into the causes, consequences, and treatment of myalgic encephalomyelitis (ME) and related conditions. On this site you will find research news, educational literature, and information on accessing social care services and support.

Patient apple icon (PatientApple.gif) The 25% M.E. Group

Support for those severely affected by M.E.

Patient apple icon (PatientApple.gif) Young Action Online

YA Online is a personal initiative of Jane Colby and Mark Colby who wanted to create a concentrated resource of solid information from creditable sources for young people with ME, their families and professionals, using the internet to make that information widely and freely available.

Patient apple icon (PatientApple.gif) Northern Ireland ME Association

Provides support and information for those affected with ME.

Patient apple icon (PatientApple.gif) Edinburgh ME Self help Group

Provides support and information for those affected with ME.

Patient apple icon (PatientApple.gif) Oxfordshire ME Group for Action (OMEGA)

A support and campaign group for people with ME/CFS.

Patient apple icon (PatientApple.gif) Chronic Fatigue and Chronic Fatigue Syndrome

A Practical Self Help Guide produced by Vincent Deary of The Chronic Fatigue Syndrome Research and Treatment Unit, Kings College Hospital.

Patient apple icon (PatientApple.gif) SupportME

UK based resource for sufferers of ME / Chronic Fatigue Syndrome. Research, News, Chat, Guide etc.

Patient apple icon (PatientApple.gif) Foggy Friends

Offers friendship, support and fun through a website, forum and chat room. Carers and supporters are also encouraged to join - everyone who is affected by ME/CFS is welcome.

Patient apple icon (PatientApple.gif) Chronic Fatigue Syndrome

Information from NHS Choices - the government's patient information portal.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.


Checked: 2 Sep 2011

Comprehensive patient resources are available at www.patient.co.uk
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