Kidney (Renal) Disorders

UK sources of information and / or support

 Patient UK

Has information leaflets on various kidney disorders

 Kidney Research UK

Kidney Research UK funds research that focuses on the prevention, treatment and management of kidney disease. Kidney Research UK also dedicates its work to improving patient care and raising awareness of kidney disease.

 EdRenINFO

Information provided by the Royal Infirmary of Edinburgh Renal Unit for patients and for doctors who are not renal specialists. This site includes information about many kidney problems including the following: Alport Syndrome, Renal Failure, Nephritis, Dialysis, Diabetic Kidney Disease, Glomerulosclerosis, Goodpasture's Disease, Haematuria, Haemolytic Uraemic Syndrome, Kidney Stones, Nephrotic Syndrome, Polycystic Kidneys, Proteinuria, Renal Biopsy, Transplantation, Urinary Tract Infections, Vasculitis.

 Kidney Patient Guide

This website provides information for renal patients, their partners and families, health care professionals and anyone else who is interested in kidney disease.

 Kidney Alliance

The Kidney Alliance was formed jointly by the Renal Association and the National Kidney Federation in 1998 with the support of the British Renal Symposium. The aim was to bring together patients' voice and professionals committed to renal medicine. Its mission:...."to promote high quality treatment for all patients with kidney failure on an equal and uniform base throughout the UK".

 UK National Kidney Federation

Run by kidney patients for kidney patients. Its aim is to promote, throughout the United Kingdom, the welfare of persons suffering from Kidney Disease or Renal failure and those relatives and friends who care for them. Also includes factsheets on various kidney disorders, as well as information from the basics of kidney disease, to tests and treatment.

 Kidneywise

A community site for patients with kidney disease or kidney failure, their carers and renal healthcare professionals. Sponsored by Baxter.

 Renal

Department of Health policy documents and guidance for professionals working for the prevention and treatment of kidney disorders

 Polycystic Kidney Disease Charity

Aims to support families who live with Polycystic Kidney Disease, and to provide information and advice to them and their healthcare professionals.

 Nephrotic Syndrome In Children Support Group

A support group offering advice for children suffering Nephrotic Syndrome and support for their families.

 Children's Kidney Trust

For children with kidney disease and kidney failure who require dialysis or are awaiting a transplant.

 Loin Pain and Haematuria Syndrome

Aims to give help, support and a sympathetic ear for those with Loin pain and Haematuria syndrome.

 Laparoscopic nephrolithotomy and pyelolithotomy

A patient guide to complement the NICE national guideline for health professionals called Laparoscopic nephrolithotomy and pyelolithotomy.

 Laparoscopic deroofing of simple renal cysts

A patient guide to complement the NICE national guideline for health professionals called Laparoscopic deroofing of simple renal cysts.

 Laparoscopic partial nephrectomy

A patient guide to complement the NICE national guideline for health professionals called Laparoscopic partial nephrectomy.

 Laparoscopic pyeloplasty

A patient guide to complement the NICE national guideline for health professionals called Laparoscopic pyeloplasty.

 Loin Pain Haematuria Syndrome International Organisation

A general support site set up on an International basis with members in UK, USA, Australia, New Zealand, Canada, and Colombia. Provides information about this chronic condition regarding treatments, drugs together with a Forum at so that patients can contact each other to offer support as quickly as possible.

 Department of Health

Policy documents and guidance for professionals working for the prevention and treatment of kidney disorders. Includes information on the Renal National Service Framework (NSF).

 London Urology Online

Straightforward details on a variety of urological topics, including kidney tumours.

 National Collaborating Centre for Chronic Conditions

The National Collaborating Centre for Chronic Conditions (NCC-CC) is a collaborative, multi-professional centre undertaking commissions to develop clinical guidelines for the NHS in England and Wales. The site provides an information service sourced from the Royal College of Physicians. Includes a section on Anaemia Management in Chronic Kidney Disease.

 Medicine Guide for Kidney Problems

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.