Sign inEpilepsy
UK sources of information and / or support
Patient UK
Has a range of information leaflets on epilepsy:
- Epilepsy - A General Introduction
- Could it be Epilepsy?
- Epilepsy with Partial Seizures
- Epilepsy with Absence Seizures
- Epilepsy with Tonic-clonic Seizures
- Dealing with a Tonic-clonic Seizure
- Living with Epilepsy
- Treatments for Epilepsy
- Epilepsy - Contraception/Pregnancy Issues
- Sudden Unexpected Death in Epilepsy
Epilepsy Action
Lots of useful information on epilepsy, and a special area for kids and for medical practitioners.
Epilepsy Bereaved?
Help for people bereaved through epilepsy.
Epilepsy and Pregnancy Register
For pregnant women with epilepsy a major concern may be whether their anti-epileptic drug treatment will cause any harm to their unborn child. A major study has been established in conjunction with the British Neurological Surveillance Unit to collect information about the safety of anti-epileptic drugs in pregnancy.
Epilepsy Research UK
Epilepsy Research UK funds research into the causes, treatment and prevention of epilepsy. Their website also has general information about epilepsy.
Epilepsy Society
Is striving for a world without epilepsy. In the meantime the society seeks to enhance the health and well-being of people with epilepsy by improving clinical treatment and care and by the provision of health information to people with epilepsy, to health professionals and the general public.
Epilepsy Scotland
Exists to improve the quality of life for people with epilepsy and their families. Provides advice, information and support, both to the public and to professional people, on any aspect of epilepsy.
Epilepsy Wales
Aims to help people with epilepsy in Wales, their families and carers by offering various services. A bi-lingual service is provided wherever possible.
Matthew's Friends
Aims to aid and support people with epilepsy and their carers who undertake the Ketogenic Diet treatment for epilepsy.
National Centre for Young People with Epilepsy
An organisation dedicated to helping children and young people with epilepsy and other needs.
St. Elizabeth's Centre
The St. Elizabeth's Centre at Much Hadham, near to Bishop's Stortford in East Hertfordshire is one of only two national epilepsy centres offering services to all age groups. For 100 years the Centre has been providing education, care and medical support to people with epilepsy and associated disabilities.
UpBeat
Website for teenagers with epilepsy including factsheets, email helpline and more.
Youth Epilepsy
Youth Epilepsy is for young people by young people living with epilepsy.
Epilepsy (children) - newer drugs
A patient guide to complement the NICE guideline of the same name for health professionals.
Epilepsy (adults) - newer drugs
A patient guide to complement the NICE guideline of the same name for health professionals.
Vagus nerve stimulation for refractory epilepsy in children
A patient guide to complement the NICE guideline of the same name for health professionals.
Epilepsy (partial) - retigabine (adjuvant)
A patient guide to complement the NICE guideline of the same name for health professionals.
Epilepsy in children and young people
A patient guide to complement the SIGN national guideline for health professionals.
Living with Epilepsy
Patient experience from Healthtalkonline.
Epilepsy
Information from emc Medicine Guides.
Convulsions
Information from emc Medicine Guides.
Young People Living with Epilepsy as a Long Term Condition
Young person's experience from Youthhealthtalk.
Young People and Epilepsy
Young person's experience from Youthhealthtalk.
Epilepsy
Information from the British Brain and Spine Foundation.
Further sources / more detailed information
Some non-UK sites
The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.
- Non-UK disease / illness sites
- Non-UK self-help / support group sites
More detailed medical information
The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.
- PatientPlus - hundreds of medical reference articles provided by Patient UK.
- Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
- Database of UK Clinical Guidelines - from NICE, SIGN, etc.
- Medline - abstracts available from thousands of journals.
- Sites listing free online medical textbooks and journals.
- Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.