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Epilepsy

UK sources of information and / or support

Patient apple icon (PatientApple.gif) The leaflets section of Patient UK

Includes a number of leaflets on Epilepsy.

Patient apple icon (PatientApple.gif) National Society for Epilepsy

Is striving for a world without epilepsy. In the meantime the society seeks to enhance the health and well-being of people with epilepsy by improving clinical treatment and care and by the provision of health information to people with epilepsy, to health professionals and the general public.

Patient apple icon (PatientApple.gif) Epilepsy Action

Lots of useful information on epilepsy, and a special area for kids and for medical practitioners.

Patient apple icon (PatientApple.gif) Epilepsy Scotland

Exists to improve the quality of life for people with epilepsy and their families. Provides advice, information and support, both to the public and to professional people, on any aspect of epilepsy.

Patient apple icon (PatientApple.gif) Epilepsy Wales

Aims to help people with epilepsy in Wales, their families and carers by offering various services. A bi-lingual service is provided wherever possible.

Patient apple icon (PatientApple.gif) Epilepsy

A patient guide to complement the NICE national guideline for health professionals called Epilepsy.

Patient apple icon (PatientApple.gif) Epilepsy (children) - newer drugs

A patient guide to complement the NICE national guideline for health professionals called Epilepsy (children) - newer drugs.

Patient apple icon (PatientApple.gif) Epilepsy (adults) - newer drugs

A patient guide to complement the NICE national guideline for health professionals called Epilepsy (adults) - newer drugs.

Patient apple icon (PatientApple.gif) Vagus nerve stimulation for refractory epilepsy in children

A patient guide to complement the NICEnational guideline for health professionals called Vagus nerve stimulation for refractory epilepsy in children.

Patient apple icon (PatientApple.gif) Contraception and Pregnancy: Epilepsy Information for women

Cambridge University Hospital NHS Foundation Trust provide a wide range of patient information leaflets including one in this area.

Patient apple icon (PatientApple.gif) Seizures Following Craniotomy

Cambridge University Hospital NHS Foundation Trust provide a wide range of patient information leaflets including one in this area.

Patient apple icon (PatientApple.gif) Epilepsy in children and young people

A patient guide to complement the SIGN national guideline for health professionals.

Patient apple icon (PatientApple.gif) Epilepsy

From the 'Behind the Medical Headlines' website developed to provide authoritative and independent expert commentaries on topical medical matters reported in the international media. Produced by the Royal College of Physicians of Edinburgh and Royal College of Physicians and Surgeons of Glasgow.

Patient apple icon (PatientApple.gif) Medicine Guide for Epilepsy

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

Patient apple icon (PatientApple.gif) Medicine Guide for Convulsions

Provides detailed information about the drugs available to treat this condition. Medicine Guides provide reliable information about medicines, conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

Patient apple icon (PatientApple.gif) BBC Guide to Epilepsy

Clear, quality health information from the BBC. Includes a factsheet, articles, audio clips, links to organisations and people who can help, and a quiz.

Patient apple icon (PatientApple.gif) Epilepsy Research UK

Epilepsy Research UK funds research into the causes, treatment and prevention of epilepsy. Their website also has general information about epilepsy.

Patient apple icon (PatientApple.gif) Next of Kin

A company providing a service to individuals so that next of kin can be contacted in cases of emergency. There is also a facility to hold medical information to be accessed by professionals if necessary. A range of services are available for children, those living alone, those with medical conditions and others.

Patient apple icon (PatientApple.gif) National Centre for Young People with Epilepsy

An organisation dedicated to helping children and young people with epilepsy and other needs.

Patient apple icon (PatientApple.gif) St. Elizabeth's Centre

The St. Elizabeth's Centre at Much Hadham, near to Bishop's Stortford in East Hertfordshire is one of only two national epilepsy centres offering services to all age groups. For 100 years the Centre has been providing education, care and medical support to people with epilepsy and associated disabilities.

Patient apple icon (PatientApple.gif)  Living with Epilepsy

Healthtalkonline, is an award-winning charity website, which lets you share in other people's experiences of health and illness. The information is based on qualitative research into patient experiences led by experts at the University of Oxford.

Patient apple icon (PatientApple.gif)  Young People Living with Epilepsy as a Long Term Condition

Youthhealthtalk is a website about young people’s real life experiences of health and lifestyle. It is not just a website about the medical facts, this is about real people and real lives.

Patient apple icon (PatientApple.gif)  Young People and Epilepsy

Youthhealthtalk is a website about young people’s real life experiences of health and lifestyle. It is not just a website about the medical facts, this is about real people and real lives.

Patient apple icon (PatientApple.gif) Epilepsy and Pregnancy Register

For pregnant women with epilepsy a major concern may be whether their anti-epileptic drug treatment will cause any harm to their unborn child. A major study has been established in conjunction with the British Neurological Surveillance Unit to collect information about the safety of anti-epileptic drugs in pregnancy.

Patient apple icon (PatientApple.gif) Epilepsy Bereaved?

Help for people bereaved through epilepsy.

Patient apple icon (PatientApple.gif) UpBeat

Website for teenagers with epilepsy including factsheets, email helpline and more.

Patient apple icon (PatientApple.gif) British Brain and Spine Foundation

Have very good information booklets which you can download, including one on epilepsy.

Patient apple icon (PatientApple.gif) Epilepsy

Information from NHS Choices - the government's patient information portal.

Patient apple icon (PatientApple.gif) Epilepsy

Information from BUPA.

Patient apple icon (PatientApple.gif) Childhood seizures

Information from BUPA.


Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.


Checked: 11 Feb 2009

Comprehensive patient resources are available at www.patient.co.uk

The authors and editors of this article are employed to create accurate and up to date content reflecting reliable research evidence, guidance and best clinical practice. They are free from any commercial conflicts of interest. Find out more about updating.

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Related pages in Patient UK

 Epilepsy - A General Introduction
 Epilepsy - Childhood Absence Seizures
 Epilepsy - Contraception / Preg. Issues
 Epilepsy - Could It Be?
 Epilepsy - Dealing With a Seizure
 Epilepsy - Living With Epilepsy
 Epilepsy - Partial Seizures
 Epilepsy - Tonic Clonic Seizures
 Epilepsy - Treatments
 Epilepsy and Sudden Unexpected Death (SUDEP)

Support Group ASSERT - Angelman Syndrome Support Education and Research Trust
Support Group Epilepsy Action
Support Group Epilepsy Bereaved
Support Group Epilepsy Connections
Support Group Epilepsy Research UK
Support Group Epilepsy Scotland
Support Group Epilepsy Wales
Support Group Joint Epilepsy Council
Support Group MedicAlert® Foundation
Support Group National Society for Epilepsy
Support Group NCYPE - National Centre for Young People with Epilepsy
Support Group NEAD Trust (Non Eplieptic Attack Disorder)
Support Group Quarriers
Support Group St Elizabeth's Centre
Support Group Support Dogs
Support Group UK Epilepsy and Pregnancy Register

 Blackouts
 Epilepsy in Elderly People
 First Seizure
 Managing Epilepsy in Primary Care
 Non-epileptic Seizures
 Status Epilepticus Management

 Guidelines on Epilepsy

 Convulsions
 Non Epileptic Attack Disorder (NEAD)

 Epileptic Seizure (First Aid)

 Links to online videos on Epilepsy

Recent related news items

 Epilepsy drugs 'increase risk of pregnancy complications'
 Hospital 'sorry' for boy's death
 Tumour op gives Owen chance of normal life
 Cause of epilepsy explored
 Scientists halt epilepsy in mice

All news by related topic

 Seizures news
 Epilepsy news

Medical equipment

 Medical Bracelets
 Pill/Tablet Equipment

Visit the Patient UK Medical Equipment shop

Books

 Coping with Epilepsy
 Epilepsy (Coping with)
 Epilepsy (Understanding)
 Epilepsy and Seizures (The Daily Telegraph)
 Epilepsy and Your Child: Answers At Your Fingertips (2nd Edition)
 Epilepsy. The Facts
 Epilepsy: Answers At Your Fingertips (2nd Edition)
 Epilepsy: British Medical Association's Family Doctor Series

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