Epilepsy

UK sources of information and / or support

 The leaflets section of Patient UK

Includes a number of leaflets on Epilepsy.

 National Society for Epilepsy

Is striving for a world without epilepsy. In the meantime the society seeks to enhance the health and well-being of people with epilepsy by improving clinical treatment and care and by the provision of health information to people with epilepsy, to health professionals and the general public.

 British Epilepsy Association

Lots of useful information on epilepsy, and a special area for kids and for medical practitioners.

 Epilepsy Scotland

Exists to improve the quality of life for people with epilepsy and their families. Provides advice, information and support, both to the public and to professional people, on any aspect of epilepsy.

 Epilepsy Wales

Aims to help people with epilepsy in Wales, their families and carers by offering various services. A bi-lingual service is provided wherever possible.

 Epilepsy

A patient guide to complement the NICE national guideline for health professionals called Epilepsy.

 Epilepsy (children) - newer drugs

A patient guide to complement the NICE national guideline for health professionals called Epilepsy (children) - newer drugs.

 Epilepsy (adults) - newer drugs

A patient guide to complement the NICE national guideline for health professionals called Epilepsy (adults) - newer drugs.

 Vagus nerve stimulation for refractory epilepsy in children

A patient guide to complement the NICE national guideline for health professionals called Vagus nerve stimulation for refractory epilepsy in children.

 Epilepsy in children and young people

A patient guide to complement the SIGN national guideline for health professionals.

 Medicine Guide for Convulsions

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Medicine Guide for Epilepsy

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Medicine Guide for Lennox-Gastaut Syndrome

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 BBC Guide to Epilepsy

Clear, quality health information from the BBC. Includes a factsheet, articles, audio clips, links to organisations and people who can help, and a quiz.

 Epilepsy Research Foundation

The Epilepsy Research Foundation was established in 1991 with the aim of funding research into the causes, treatment and prevention of epilepsy. Their website also has general information about epilepsy.

 Next of Kin

A company providing a service to individuals so that next of kin can be contacted in cases of emergency. There is also a facility to hold medical information to be accessed by professionals if necessary. A range of services are available for children, those living alone, those with medical conditions and others.

 National Centre for Young People with Epilepsy

An organisation dedicated to helping children and young people with epilepsy and other needs.

 St. Elizabeth's Centre

The St. Elizabeth's Centre at Much Hadham, near to Bishop's Stortford in East Hertfordshire is one of only two national epilepsy centres offering services to all age groups. For 100 years the Centre has been providing education, care and medical support to people with epilepsy and associated disabilities.

  DIPEx

DIPEx (Database of Individual Patient Experiences) is an Oxford based registered charity. It is a database of audio, video and transcript of interviews with patients experiencing a particular illness or health problem. Includes a module on epilepsy.

 Epilepsy and Pregnancy Register

For pregnant women with epilepsy a major concern may be whether their anti-epileptic drug treatment will cause any harm to their unborn child. A major study has been established in conjunction with the British Neurological Surveillance Unit to collect information about the safety of anti-epileptic drugs in pregnancy.

 Epilepsy Bereaved?

Help for people bereaved through epilepsy.

 UpBeat

Website for teenagers with epilepsy including factsheets, email helpline and more.

 British Brain and Spine Foundation

Have very good information booklets which you can download, including one on epilepsy.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.