Endometriosis

UK sources of information and / or support

 The leaflets section of Patient UK

Includes a leaflet called Endometriosis.

 Endometriosis UK

Information and support for women with endometriosis. Includes a helpline.

 Endometriosis SHE Trust

Offers help, holistic information and support to women with endometriosis and everyone else interested, to be able to make informed choices about conventional, nutritional and complementary therapies that are available for the management of this disease.

 Endometriosisguide.com

Attempts to provide patients with state-of-the-art information to enable them to make informed decisions about treatment. The book's unique format as a digital publication with an accompanying web-site allows the reader to be kept thoroughly up-to-date. The book, both in printed form and on the web, is being revised every six months on the basis of new developments in research and feed-back from patients. The author is a Consultant Gynaecologist at John Radcliffe Hospital, Oxford.

 Endoaware

Support site for women with endometriosis. Hundreds of memembers. Offers support to: those who have endometriosis; those whoare having trouble with fertility; those who have hadto have a hysterectomy. Includes a support forum for teenagers with endometriosis.

 Women's Health Concern

Women's Health Concern is a charitable organisation which aims to help educate and support women with their healthcare by providing unbiased, accurate information.

 Laparoscopic helium plasma coagulation for the treatment of endometriosis

A patient guide to complement the NICE national guideline for health professionals called Laparoscopic helium plasma coagulation for the treatment of endometriosis.

 Laparoscopic uterine nerve ablation (LUNA) for chronic pelvic pain

A patient guide to complement the NICE national guideline for health professionals called Laparoscopic uterine nerve ablation (LUNA) for chronic pelvic pain.

 Medicine Guide for Endometriosis

Medicine Guides provide reliable information about medicines (drugs), conditions and the different treatment options available. They have been developed in the UK as part of the Medicines Information Project.

 Pelvic Pain Support Network

This site covers several common as well as many less common pelvic painconditions. For example, Adenomyosis, Adhesions, Dysmenorrhoea (Painful Periods), Endometriosis, Fibroids, Fibromyalgia, Irritable Bowel Syndrome (IBS), Nerve Damage (Sciatic, Pudendal, Ilio-inguinal), Ovarian Remnant Syndrome, Pelvic Inflammatory Disease (PID), Pudendal Neuralgia, Painful Bladder Syndrome/Interstitial Cystitis (PBS/IC), Vulvodynia. It has sections for patients, clinicians and researchers.

Further sources / more detailed information

Some non-UK sites

The following list popular non-UK health information sites with content aimed at the general public. They are mainly from the US. They have not been checked to see if information about the above topic is included but these large sites are comprehensive.

• Non-UK disease / illness sites
• Non-UK self-help / support group sites

More detailed medical information

The following list online sources of more detailed medical information, mainly from the UK. These sites are mainly aimed at health professionals, but are of interest to all. They have not been checked to see if information about the above topic is included, but information about most medical topics can usually be found.

• PatientPlus - hundreds of medical reference articles provided by Patient UK.
• Evidence Based Medicine - such as from Clinical Evidence, The Cochrane Library, etc.
• Database of UK Clinical Guidelines - from NICE, SIGN, Clinical Knowledge Summaries, etc.
• Medline - abstracts available from thousands of journals.
• Sites listing free online medical textbooks and journals.
• Sites listing free medical images - pictures, atlases, anatomy, skin diseases, etc.