Wilson's Disease Support Group

36 Audley Drive
Lenton Abbey
Beeston
Nottingham
NG9 2SF

Web: www.wilsonsdisease.org.uk

The Wilson's Disease Support Group UK (WDSG-UK) is an all-volunteer organisation which strives to promote the well-being of patients with Wilson's Disease and their families and friends.

The group aims to:

  • Provide patient support.
  • Provide and promote education and outreach.
  • Provide informative articles about the nature of the disease and articles written by patients, families and friends about their experiences of the disease.
  • Promote networking of Wilson's disease patients and their families by helping and encouraging them to correspond with each other.
  • Generate a wider awareness of Wilson's disease and its diagnosis within the medical profession.
  • Answer questions from the public about the disease.
  • Provide relevant information for professionals to heighten awareness of the disease and to educate people about the disease.
  • Offer advice on referral to doctors and resources for patient with Wilson's disease.
  • Distributes pamphlets and other information to genetics clinics and other professional groups for distribution to patients and their families.
  • Promote public awareness of Wilson's disease through media coverage.
Checked: 3 Jun 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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