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Wilson's Disease Support Group
36 Audley Drive
Lenton Abbey
Beeston
Nottingham
NG9 2SF
Web:www.wilsonsdisease.org.uk
The Wilson's Disease Support Group UK (WDSG-UK) is an all-volunteer organisation which strives to promote the well-being of patients with Wilson's Disease and their families and friends.
The group aims to:
- Provide patient support.
- Provide and promote education and outreach.
- Provide informative articles about the nature of the disease and articles written by patients, families and friends about their experiences of the disease.
- Promote networking of Wilson's disease patients and their families by helping and encouraging them to correspond with each other.
- Generate a wider awareness of Wilson's disease and its diagnosis within the medical profession.
- Answer questions from the public about the disease.
- Provide relevant information for professionals to heighten awareness of the disease and to educate people about the disease.
- Offer advice on referral to doctors and resources for patient with Wilson's disease.
- Distributes pamphlets and other information to genetics clinics and other professional groups for distribution to patients and their families.
- Promote public awareness of Wilson's disease through media coverage.
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