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ADDER - Action for Dystonia, Diagnosis, Education & Research
Lead RoadGreenside
Ryton
Tyne and Wear
NE17 7L
Tel: 0191 413 9500
Web: www.dystonia.co.uk
ADDER covers the entire country but has its roots in the North East of England where it covers Northumberland, Tyne & Wear, Co. Durham and Cleveland and Cumbria. Through a member's current research, working with the Medical Profession they have established a database of over 2000 people with dystonia throughout the North East and Cumbria since they started their awareness raising campaigns in 1993.
There are currently a number of different groups being established on Tyneside, Teesside, Durham, Darlington, Sunderland and Cumbria. The groups are run entirely by people with dystonia or who have family members with dystonia and are supported by one full time co-ordinator who has Dystonia and a 12 member volunteer Management Committee who administer the organisation.
Research based on the local hospitals has proven that dystonia is the 3rd most prevalent movement disorder after Parkinson's Disease and Benign Essential Tremor and more prevalent than other better known diseases of the central nervous system such as Motor Neurone Disease
Checked: October 2006
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