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UK Epilepsy and Pregnancy Register
Department of Neurology (Ward 4E)
Royal Victoria Hospital
Belfast
BT12 6BA
Tel: 0800 389 1248
Fax: 0289 0235 258
Web: www.epilepsyandpregnancy.co.uk
Pregnancy is an exciting yet potentially worrying time in a woman's life. For pregnant women with epilepsy a major concern may be whether their anti-epileptic drug treatment will cause any harm to their unborn child.
A major study has been established in conjunction with the British Neurological Surveillance Unit to collect information about the safety of anti-epileptic drugs in pregnancy.
A vital part of that study is the UK Epilepsy and Pregnancy Register.
Over recent years, the number of epilepsy drugs has almost doubled, so there is a need to determine which anti-epileptic treatments provide the best seizure control for each individual with the smallest risk to the baby's health.
In order to do this, it is necessary to know which drugs a woman takes during her pregnancy and to correlate that with the health of her baby at birth. That is why the UK Epilepsy and Pregnancy Register has been set up with the British Neurological Surveillance Unit.
The aim is to identify which epilepsy drug therapy women are taking during pregnancy and to collect information, from their General Practitioner, on the health of their babies after birth. They would also like women, diagnosed with epilepsy, who are not taking anti-epileptic drugs to control their epilepsy, to register their pregnancy.
By agreeing to join the Register, you will be contributing to knowledge that may well be of great value to pregnant women in the future.
Disclaimer: Patient UK has no control of the content of the above links. Inclusion does not imply endorsement by Patient UK.
Related pages in Patient UK
Information leaflets related to this topic (^ top of page)
Epilepsy - A General Introduction
Epilepsy - Childhood Absence Seizures
Epilepsy - Contraception / Preg. Issues
Epilepsy - Could It Be?
Epilepsy - Dealing With a Seizure
Epilepsy - Living With Epilepsy
Epilepsy - Partial Seizures
Epilepsy - Tonic Clonic Seizures
Epilepsy - Treatments
Epilepsy and Sudden Unexpected Death (SUDEP)
Healthy Start
Maternity Benefits
Pregnancy - Planning to Become Pregnant?
Pregnancy - Planning to Become Pregnant? - A summary
Pregnancy - Pre-Eclampsia
Pregnancy - Routine Screening Tests
Pregnancy and Alcohol
Pregnancy and Caffeine
Pregnancy and Diet
Pregnancy and Dyspepsia
Pregnancy and Employment
Pregnancy and Folic Acid
Pregnancy and High Blood Pressure
Pregnancy and Medication
Pregnancy and Rubella
Pregnancy and Sickness and Vomiting
Pregnancy and Smoking
Pregnancy and Street DrugsPatient Support related to this topic (^ top of page)
AIMS - Association for Improvements in Maternity Services
ASSERT - Angelman Syndrome Support Education and Research Trust
BPAS - British Pregnancy Advisory Service
CAREconfidential
Centre for Pregnancy Nutrition
Disability, Pregnancy & Parenthood International
Enlighten - Tackling Epilepsy
Epilepsy Action
Epilepsy Bereaved
Epilepsy Connections
Epilepsy Research UK
Epilepsy Scotland
Epilepsy Wales
Health Healthy Start Scheme
Joint Epilepsy Council
Life (pregnancy support)
Lifeline Pregnancy Counselling and Care
Multiple Births Foundation
National Childbirth Trust
National Society for Epilepsy
NCYPE - National Centre for Young People with Epilepsy
Royal College of Midwives
Society for the Protection of Unborn Children
St Elizabeth's Centre
Tiny Tickers
WellBeing (women's health)
Women's Health ConcernMedical reference articles in PatientPlus related to this topic (^ top of page)
Anaemia In Pregnancy
Antenatal Infections and their Consequences
Epilepsy in Adults
Epilepsy in Elderly People
Flying with Medical Conditions
Hypertension in Pregnancy
Managing Epilepsy in Primary Care
Physiological Changes In Pregnancy
Renal Disease in PregnancyDiagrams related to this topic (^ top of page)
Kickchart (diagram)UK guidelines related to this topic (^ top of page)
Guidelines on Epilepsy
Guidelines on PregnancyOnline videos related to this topic (^ top of page)
Online videos on Epilepsy
Online videos on PregnancyRecent news items related to this topic (^ top of page)
'Extreme Atkins' diet can treat epilepsy in children
Smokers who give up during pregnancy have good-natured children, claims study
Alcohol ban advised for pregnancy
Parents pass on breech baby genes
Breech deliveries inherited
The gamble of having a home birth
Midwife shortage hits home births
Asthma link to pregnancy stressLinks to other selected websites related to this topic (^ top of page)
Epilepsy
Pregnancy and ChildbirthPoems and stories related to this topic (^ top of page)
Epileptic Seizure (First Aid)Other - Useful resources (^ top of page)
Pictures, diagrams, photos, images, etc.Evidence based medicine
Online textbooks and journals
A-Z of UK Guidelines
A-Z of Online Videos
Medline
Other good health sites
Medical equipment products related to this topic (^ top of page)
Medical Bracelets
Pill/Tablet Equipment
Books related to this topic (^ top of page)
Coping with Epilepsy
Epilepsy (Coping with)
Epilepsy (Understanding)
Epilepsy and Seizures (The Daily Telegraph)
Epilepsy and Your Child: Answers At Your Fingertips (2nd Edition)
Epilepsy. The Facts
Epilepsy: Answers At Your Fingertips (2nd Edition)
Epilepsy: British Medical Association's Family Doctor Series
Healthy Pregnancy
National Childbirth Trust Book of Pregnancy, Birth and Parenthood
New Pregnancy and Birth Book
Pregnancy & Childbirth Answers (Complete)
Pregnancy (Blooming): Surviving and thriving for him and her
Pregnancy (Healthy)
Pregnancy (Understanding)
Pregnancy : British Medical Association's Family Doctor Series
Pregnancy and Birth Book (New)
Pregnancy and Post Natal Exercise video from the BBC
Pregnancy for Dummies
What to Expect the First Year
What to Expect When You're Expecting
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