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PXE International
Stable House
Swithland Court
Woodhouse Eaves
Leicestershire
LE12 8SS
Tel: 01509 891 632
Web: www.pxe.org
Best time to telephone: Monday - Friday, 9am - 5pm
Offers advice and support for people with pseudoxanthoma elasticum (PXE).
The goals of PXE International are to:
- Disseminate information to patients, families and doctors.
- Initiate and support research.
- Review the literature.
- Establish patient support networks.
- Manage the PXE International Blood and Tissue Bank.
They maintain an international register of all affected families and helpful medical specialists. They disseminate information about PXE, both for lay people and medical specialists, in many languages. They have networks throughout the world, providing written, telephone, e-mail, physician referral and meeting connections. The PXE International Blood and Tissue Bank provides DNA and tissue samples, anonymously, to all approved research projects.
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