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Xeroderma Pigmentosum Support Group

Instron House
Coronation Road
High Wycombe
Bucks
HP12 3SY

Tel: 01494 459888
Web: http://joomla.xpsupportgroup.org.uk

The Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with xeroderma pigmentosum.

The group aims to relieve the needs of persons with xeroderma pigmentosum and other related conditions, and their families.

The Group raises funds for research, gives grants for UV protective equipment and products, and assists families to attend the group's own night-time camp, called the Owl Patrol, as well as night camps in the USA, France and Germany.

Checked: 3 Jun 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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