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Hughes' Syndrome Foundation
Lupus Unit
Gassiot House
St Thomas' Hospital
London
SE1 7EH
Tel: 020 7188 8217
Web: www.hughes-syndrome.org
The Hughes' Syndrome Foundation aims to offer understanding and support to sufferers of Hughes' syndrome - also known as antiphospholipid syndrome. Hughes' syndrome is an autoimmune disorder which can cause headaches, migraines, strokes, and thrombosis - it can also cause recurrent miscarriage. Once diagnosed, Hughes' syndrome is potentially treatable but, as the condition is relatively new, it often goes undetected or misdiagnosed. The foundation hopes to raise awareness of Hughes' syndrome so that they can discover more about its causes, prevalence, and treatments.
They also aim to offer:
- Information and education on Hughes' syndrome.
- Support research into the condition.
- To raise funds to provide information, education and research.
The Hughes' Syndrome Foundation has set up a membership scheme which gives it's members up-to-date information through a regular newsletter everything happening with the foundation, it's staff, and the condition.
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