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Goldenhar Family Support Group (UK)

Durrington
Ridgeway Close
Horsell
Woking
Surrey
GU21 4RD

Web: www.goldenhar.org.uk

The Goldenhar Syndrome Support Group is a registered UK charity.

The aims of the group are to:

  • Put families in touch with other families who have children or family members with similar problems.
  • Give parents and patients viewpoints about the syndrome through a regular newsletter.
  • Provide a link to other organisations who might be able to help families.
  • Pass on some general information from specialists in the medical profession.
  • Offer practical support for common issues.

A leaflet is available on request.

Checked: 18 May 2011
For the planned review period see the Data Creation and Quality Control Process.

Comprehensive patient resources are available at www.patient.co.uk

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