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Syndromes Without A Name
6 Acorn Close
Great Wyrley
Walsall
West Midlands
WS6 6HP
Tel: 01922 701234
Fax: 01922 701234
Web: www.undiagnosed.org.uk
Best time to telephone: normal working hours (answerphone also operates)
Syndromes Without A Name (SWAN) is a registered charity set up to help raise awareness of children who suffer from undiagnosed disorders. The symptoms that these children display can be wide and varied. Because no two children's symptoms appear the same, it is difficult for medical professionals to confirm a diagnosis. SWAN's aims are as follows:
- To help the families of sufferers by providing information and support.
- To create a database of cases in an effort to find similarities.
- To campaign for equal rights and recognition for these children and their families.
- To develop an international database to help with research.
SWAN produces a newsletter, Sygnet, which includes articles from families, book reviews, and details of other sources of help and information.
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